Portlandさんのインスタグラム写真 - (PortlandInstagram)「This Saturday head to the @franceschangedmylife block party presented by @revantoptics!  The lead singer of @portugaltheman daughter Frances, has an extremely rare genetic mutation of DHDDS. She is 1 of 6 known cases in the world and while there was no hope for a cure a decade ago, medical science is now in the experimental phases of developing treatments for rare diseases.  Money from this fundraiser will go to research and helping the families of these children.  Come watch Portugal the man, be in community, and support one another this Saturday.」9月14日 12時49分 - portland

Portlandのインスタグラム(portland) - 9月14日 12時49分


This Saturday head to the @franceschangedmylife block party presented by @revantoptics!

The lead singer of @portugaltheman daughter Frances, has an extremely rare genetic mutation of DHDDS. She is 1 of 6 known cases in the world and while there was no hope for a cure a decade ago, medical science is now in the experimental phases of developing treatments for rare diseases.

Money from this fundraiser will go to research and helping the families of these children.

Come watch Portugal the man, be in community, and support one another this Saturday.


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2023/9/14

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