シンディ・クロフォードさんのインスタグラム写真 - (シンディ・クロフォードInstagram)「I was honored to spend time with the @ebmrf community this past weekend — to raise awareness and treatment funding for this devastating disorder. EB is a life-threatening, disabling and often extremely painful disorder that affects as many as 100,000 Americans with wounds to the skin. My heart is with these “Butterfly Children” as they bravely learn to live with EB. I’d encourage everyone to learn more and support if you can 🦋 Link in my bio #Rock4EB」5月9日 22時16分 - cindycrawford

シンディ・クロフォードのインスタグラム(cindycrawford) - 5月9日 22時16分


I was honored to spend time with the @ebmrf community this past weekend — to raise awareness and treatment funding for this devastating disorder. EB is a life-threatening, disabling and often extremely painful disorder that affects as many as 100,000 Americans with wounds to the skin. My heart is with these “Butterfly Children” as they bravely learn to live with EB. I’d encourage everyone to learn more and support if you can 🦋 Link in my bio #Rock4EB


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